2e kiddo

lilbearsmama

Member
Joined
Jan 5, 2020
Messages
14
Location
Georgia
Hello!

Does anyone else have a 2E child? My husband was found to have Asperger's syndrome (Now just called High Functioning Autism) when he went for counseling regarding his horrible anxiety and a few other issues. My son's speech therapist and the lovely doctor who supports us doing things more our own way both went - that explains your son!!!

My son also has high functioning autism co-morbid with dyspraxia and anxiety. At this point, I pretty do all his therapies myself (physical, occupational, speech) with checkups every few months. He's mostly aged out of anything available, and while all of them are aware of it, no one ever had him do those hours of testing for that piece of paper. The one attempt we made it to Atlanta only to be told that he's too "friendly and social" to be autistic and the man refused to even test him and yelled at me for wasting my time.

He's only 11, so at this point it's fine and lots can change in later years, but I do dread when we may need to get that paper trail for colleges. Apparently, unless it's from a neuropsych or the autism center (where I got yelled at) it isn't accepted as a "proper" issue. Or so I've been told by experts.

Anyone else have a kiddo who keeps them on their toes and doctors who exhaust them?
 

insanomumma

Member
Joined
Jan 10, 2020
Messages
7
hi there my youngest is add and gifted we thought it was autism as he presented like his two middle siblings with autism but they said no add and super high iq he is only 5 and we have decided to stay un medicated for time being as he has celiac disease and is dairy lactose free he keeps us on our toes with what he wants to know and learn and he is full on doesn't fall asleep easy and just always on the move he is normally found in handstand postistion gaming on his iPad he is so so different to his older three siblings
 

Dana

Member
Joined
Jan 9, 2020
Messages
8
I'm the mom of 8 of my 8 5 are on the Autism spectrum . They range in age from 33 yrs - 8 yrs When my kids got their DX they didn't have levels. They are considered high functioning. The anxiety and attentional issues that I hear people speak about separately were at one point considered part of the ASD Dx because they are rooted in the Autism opposed to NT people and how they experience the same issues. Yes I have many that keep me on my toes and I have also said the hardest part of having a special needs child is not the Dx it's the doctors and professionals who come along with it.
 

homeschoolmomof3

New member
Joined
Jan 9, 2020
Messages
3
My 11 year old son has autism, adhd, ocd , spd and episodic mood disorder. I got his diagnosis from a psychologist. Where we live it it is advantageous to have the diagnosis for services. One service is the Innovations Waiver which provides many things. I also have a 9 year old with dyslexia, dysgraphia and dyscalcula. We just started private occupational therapy for both kids and my daughter is being referred to a developmental optometrist and pediatrician. Hoping for the best we keep plugging along.
 

homeschoolmomof3

New member
Joined
Jan 9, 2020
Messages
3
Hello!

Does anyone else have a 2E child? My husband was found to have Asperger's syndrome (Now just called High Functioning Autism) when he went for counseling regarding his horrible anxiety and a few other issues. My son's speech therapist and the lovely doctor who supports us doing things more our own way both went - that explains your son!!!

My son also has high functioning autism co-morbid with dyspraxia and anxiety. At this point, I pretty do all his therapies myself (physical, occupational, speech) with checkups every few months. He's mostly aged out of anything available, and while all of them are aware of it, no one ever had him do those hours of testing for that piece of paper. The one attempt we made it to Atlanta only to be told that he's too "friendly and social" to be autistic and the man refused to even test him and yelled at me for wasting my time.

He's only 11, so at this point it's fine and lots can change in later years, but I do dread when we may need to get that paper trail for colleges. Apparently, unless it's from a neuropsych or the autism center (where I got yelled at) it isn't accepted as a "proper" issue. Or so I've been told by experts.

Anyone else have a kiddo who keeps them on their toes and doctors who exhaust them?
No one should be treated like that. That dr. should be ashamed of himself. I'm sorry you had to deal with that. Just because someone is friendly does not mean they dont have autism. It is a spectrum after all.
 
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